Ethan’s Angels – Rockin’ For A Cure

Welcome back to The Expressionist Magazine

Four years ago, a little boy was born into this world; a miracle to his family and a loving brother to his siblings.  Unfortunately, Ethan would never be able to tell his parents or brothers and sister he loves them.  He won’t be able to play video games or take part in any typical childhood activities because Ethan was born with a severe birth defect called Hypo-plastic Corpos Collossom.  However, that birth defect didn’t make Ethan any less human, or any less special than any other boy; in fact, it made him a champion.

Hyperplastic Corpus Corrosum  is an underdeveloped brain, specifically the part that connects the two hemispheres together, resulting in a failure to thrive.  Despite the circumstances, Ethan has overcome many obstacles and manages to fight for life.  He is a brave soul that just wants a chance to live a normal life, no matter the dismal prognosis of permanent brain damage.  Each day Ethan wakes up, and fights to keep his food down, as his parents feed him through a feeding tube.  He goes into an oxygen chamber for an hour each day, and once a week private nurses come in and give him blood transfusions.  Ethan also has a special teacher that visits his home once a week and works with him.  Ethan cannot speak or see well, has developed an immune deficiency, suffers from breathing problems, cannot hold his head up for long or even grab objects. It is heartwrenching to even mention the list of problems.  However, despite these challenges, on July 20, 2008 Ethan managed to smile for the very first time, showing the world he is happy and loves life.

For his parents, caring for Ethan is a 24 hour a day job, one they do without complaining or hesitation.  They love their son and will do anything for him, and that’s why they need to give Ethan a possible life saving procedure called Cord Blood Transfusion. They saved his cord blood when he was born, and that very blood could reverse many or all of his problems.  As a child, the blood is most useful at the age he is at, however, each day they wait the chances of recovery dwindle.  Many doctors in the U.S. won’t even do this 15 to 20 minute procedure that could save Ethan’s life, as they say the risks are too high.

Ethan’s mother says that he gets a blood transfusion every week, exposing him to possible disease and rejection.  This procedure is no different except it’s his own blood that has the possibility to heal him. To get this procedure they have to leave the country and go to China for a 15 minute infusion.  The procedure, with travel, costs $30,000.00.  This kind of money they must raise in order to help their son.  What really angers them is that this could be done right here in the United States. The goal is to find a U.S. doctor that will take the risk, stand up for Ethan and give him the procedure here (probably costing half of, or even a quarter of the price).  However, until that person steps up, China is their only bet.

The worst thing that could happen with this procedure is nothing; Ethan doesn’t get better at all.  On the other hand, the best case scenario would be that the nutrient rich blood could reverse all his problems making Ethan a healthy, young boy.  However, if Ethan only gains slight improvement, that will help his quality of life even in the smallest way, making the procedure well worth it.  That’s why on Saturday, December 19th, 2009 from 6:30 p.m. to midnight, local bands are going to come together to rock for a cure, raising money to help Ethan get that possible life saving procedure.

To partake in the festivities, see the info below:

Beef ‘O’ Brady’s (Wilderness Lakes)
US 41 N.
Land O’ Lakes, FL
6:30 PM to Midnight
TICKETS:  FREE CONCERT, DONATIONS WELCOME
Beef ‘O’ Brady’s will be donating 10% of proceeds to the cause, in addition to the money collected from donations.

Bands:
Charlie Nicol
Pine Hill
The Hat Trick
Holes and Hearts
The Ghost Sound
& other great musicians

There will be face painting and some crafts for sale to help raise money for the cause.

If you can’t come, you can still donate and help this little champion by going to www.ethansangels.com.  When there, just hit the contact US link.  You can also make an online donation through PayPal, or send a check.  Please make a notation that it is for the Beef ‘O’ Brady’s Land O’ Lakes fundraiser.

It will be a night of good food, good friends, and great music all for an amazing young boy who will certainly touch your heart. Maybe Ethan can’t be there in person, due to his condition, but he will be there with us in spirit.  The family is very grateful to all the participating bands, and everyone else who is helping the cause, including all the people who unselfishly have donated their time to help organize this.

Photographs by Angel’s Touch Photography